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影片介紹

 
你好大膽?! (How Dare You?!)
漸凍人/以色列/52' 導演: Lizka Assa
Hanni是個事業心重的成功年輕女性,然而在她被診斷出罹患肌萎縮性側索硬化症,得知只有兩年的時間可活之後,她的人生有了一百八十度的大轉變。她不顧周遭所有人的反對,也不聽從醫療建議,成了史上第一個在身患致命疾病的情況下,生下兩個孩子的女人。她克服了經濟困境,也在國際間最大的會計公司之一,打拼出嶄新的事業版圖。醫療機構的頑固雖然使Hanni的處境變得更加困難,但她並沒有因此倒下。
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★ 2008 希臘及莫斯科國際身心障礙者紀錄片影展獎項
 

“How Dare You?” focuses on Hanni. She will let nothing stop her from realizing her dreams. She became the first woman ever to have had two children after having been diagnosed with the fatal neurological disease, ALS. Her prognosis was two years left to live. She made her decision despite disapproval from everyone around her and against medical advice. She fought the establishment, overcame financial hardships, and built a new career.

 

 
 

我們和你一樣 (We Are Normally Different)
智障/荷蘭/67' 導演: Susanne Engels


本片演員迪歐娜、福蘭、伯特斯、及莫列茲等四人,都是智能障礙者。在《我們沒有那麼與眾不同》這部紀錄片中,觀眾將進入他們心中不難理解,卻又令人驚訝的情感世界。在那裡,你會發現角色扮演與真實之間的界限逐漸消弭,取而代之,位於中心位置的,則是他們的夢想與渴望。


These are the words of a self-assured, mentally handicapped woman. She wants to fall in love, get married and have kids, just like other people. At the same time, she is painfully aware of how impossible some of her dreams and desires are. In We're Normally Different, four mentally handicapped actors express their emotions. In the face of their daily routine - doing laundry, making phone calls, shaving, withdrawing money, vacuuming to music and eating a herring at the local fishmonger - their lives appear just as normal as they are different. One wants to be a cameraman, and learn to read and write, another wants to take public transportation and a third is looking for a boyfriend. What's feasible for one of them is out of the question for another. And then there's their personal counsellor, who mediates and decides on important issues like the societal watchdog. With the camera often in close-up and subtle use of music, the viewer gets the chance to meet and experience the personalities, interests and emotions of Fran, Dionne, Maurits and Bertus.

 

接納撒母耳 (Including Samuel)
腦麻/美國/58' 導演: Dan Habib


在Samuel沒有出生之前,他的父親從來沒有想過家裡必須容納一個身心障礙的孩子。身為攝影記者,父親以攝影機記錄患有腦性麻痺的兒子Samuel和家人相處的生活點滴,如何引導Samuel融入他們生活各個面向的努力。本片忠實地呈現他們的希望與掙扎,同時記錄四位身心障礙者的生活,包括自閉症,精神分裂症、腦性麻痺患者和他們家人的經驗。

 
 

“Including Samuel” is photojournalist Dan Habib's sensitive portrayal of his disabled son, Samuel. Habib rarely thought about the inclusion of children with disabilities before he had his son, Samuel. Now he thinks about inclusion every day. Habib documented his family's efforts to include Samuel in every facet of their lives, a journey that transforms each of them. “Including Samuel” also chronicles the lives of four other people with disabilities including autism, schizophrenia, and cerebral palsy.


 

舞動生命! (Step Up!)
肢障/加拿大/45' 導演: Tamas Wormser


Jacques原是一位年僅20歲、前途無量的舞者,然而突如其來的一場車禍幾乎毀了他的人生。所幸堅強的意志力支撐他,即使失去右腿,仍然以無比的毅力,靠著義肢從新站上舞台。「舞動生命」,紀錄Jacques在劫後餘生的前三年中,如何一步步重拾新生過程的傳記。「現在的我是誰呢?」他一邊自問著,一邊開始還原自我的旅程。在整部片當中,傑克以誠實坦率的態度與深入的自我剖析,分享他個人對於這個不請自來、幾乎取走他性命的意外事故的想法、希望與恐懼。

 

★ 2008 國際身心障礙者紀錄片最佳短片獎

 

“Step up!” is an empowering story of courage and determination, the personal journey of an exceptional young man driven to follow his dream. Jacques Poulin-Denis is a dancer with a bright future ahead of him. The worse case scenario happens: he loses his right foot in a car crash. At the end of this inspiring film, Poulin-Denis experiences a dancer's dream: performing with Mikhail Baryshnikov.

 

 

長默漫漫路迢迢 (Silence With a Touch)
尤賽氏症/聽、視障/美國/26'導演: David Conyer


如果你一出生就失聰,之後又發現你的視力漸漸減退,那會是怎樣的景況?這就是亞瑟氏症候群(Usher's Syndrome)。亞瑟氏綜合症是一種遺傳性的疾病,特徵是出生後不久便有中度至嚴重的聽覺受損,以及視覺逐步減退。由於他們不了解自己的問題或是不敢坦承自己的困難,他們的朋友常會因此疑惑為何邀請被拒。這種惡性循環可能一而再、再而三的發生,導致他們與社會產生更嚴重的隔離。本片藉由幾位亞瑟氏綜合症患者的經歷,充分討論此疾病。

 
 

Usher Syndrome is a genetic condition affecting thousands and thousands of people. This little known condition causes both hearing and progressive vision loss. In this film, you will meet people of all ages who share how their lives have been affected by Ushers, and how they've learned to adjust and overcome challenges along the way. Their stories will enlighten and inspire you.This documentary was designed to provide an overview of Ushers Syndrome. It explores the lives of three age groups of people who have Ushers…


 

向前推進 (Pushin' Forward)
脊髓損傷/美國/39' 導演: Izumi Tanaka


James Lilly有著貧困的成長過程:他是黑手黨的成員,並且從事毒品交易。直到十五歲時,他因背部中彈而癱瘓,才停止這項非法的工作。但是他沒有忘記少年時的夢想,成為「運動員」,經過多年的努力與奮鬥,如今他成了一名輪椅運動家,不僅經常參與比賽,同時也是個自己理想中的好父親。現在,他和市內貧民區的小孩分享他的故事,告訴他們那個支持他走下去的動力就是輪椅競速。在《向前推進》片中,他在阿拉斯加參與了世界上最長程的輪椅競速,並在短短的六天內,從費爾班一路推到安克拉治!

 
 

Growing up poor and Latino in Chicago, James Lilly dreamed of becoming a professional athlete, but he got sidetracked into the world of drugs and gangs. At the age of fifteen, he was shot in the back and paralyzed, but even that didn't put an immediate end to his involvement in drug dealing and fights. Four years later he decided to get away from the gang scene, but on a final visit to the old neighborhood he was attacked and nearly killed. This time, when he recovered, he began to turn his life around. Now, he helps others to do the same thing.


 

請聽我說 (Please Listen to Me)
肢障/希臘/52' 導演: Marianna Economou


有肌肉萎縮症的Costa一心希望能夠進入一般的高中就讀,而不是再度被送入專門收容身心障礙學童的學校。本片展示出Costa一家人在面臨這項抉擇所產生的焦慮、兩難、以及心理衝突等問題,而處理這些問題的過程也使柯斯塔得以在自我與他人的關係中定義自己。同時,Costa和姊姊一段對兩者都具有決定性影響的特殊的關係也將在片中公開。「就算跌倒了,我也有力量爬起來。就算被人譏笑,我也不會哭。我想交朋友。請讓我對自己負責。」

 
★希臘影展第二名
 
Costa's deep desire to go to a mainstream high school and not to a school for the disabled, reveals how differently the members of his family comprehend, experience and manage Costa's physical disability. The film follows the psychological anguish, the dilemmas and conflicts that the choice of school causes, a choice that for Costa defines the very essence of his identity in relation to himself and others. Also, Costa's special relationship to his sister is unraveled – a definitive relationship for them both.“If I fall, I have the strength to get up. If they tease me, I will not cry. I want to make friends. Allow me to be responsible for myself.”
 

 

最後的旅程 (The Last Flight)
肌張力不全/加拿大/78' 導演: Yves Langlois


Claude Messier是一個作家,患有難以忍受的病痛,只能捲曲著身體躺在床上,這病痛使他成為加拿大第一位合法使用大麻來止痛的病人。也是爭取大麻在治療上可以合法化與正常化的重要人士。Claude Messier將自身貢獻在保護身心障礙者的權利上,並稱身心障礙者為「他的子民」。他認為他們不應被藏起來像小孩一樣對待,並主張他們也是社會的一份子,擁有「正常」生活的權利。Claude Messier希望和大眾分享他的人生觀,並將他的創造能量持續傳遞到他人的手上。 .

 
★ 2008 國際身心障礙者紀錄片最佳長片獎
 
Claude Messier was an author and person with a disability person. He became a defender of the therapeutic use of cannabis. He was devoted to the rights of people with disabilities. He denounced their being treated like children, and defended their rights to have "normal" lives. He wrote several books which promote empowerment and creativity for people with disabilities. This isn't a film of voyeurism, pity or mockery, but a portrait of a man who lived fully and pushed the limits when most of us would have been stymied.
 

 
迎戰轉捩點 (Multiple)
多發性硬化症/英國/29' 導演: Lucinda Broadbent

Alison身為演員及導演,六年前,她被診斷罹患多發性硬化症(Multiple Sclerosis, 簡稱MS)。她將自己罹病一事保密:有誰想要一個生病的演員或導演?在本片中,艾莉森將自我揭密並自行承擔後果。 本片追蹤了Alison對抗病魔的心路歷程。她運用創意、讓人卸下心防的直率、以及略帶邪惡的幽默來展示MS是如何在工作、朋友、家人、以及她的自我形象上帶來衝擊。為期五個月的追蹤觀察記錄,以大膽的表現手法呈現在觀眾眼前。工作上,我們看見她現身在警匪影集中,接著又執導一部驚駭人心的電影:一個關於MS患者如何變成SM女魔頭的故事。回到家,我們看見她向性感的鞋子吻別,然後穿上行動輔助裝置。Multiple以更多的笑聲來代替自憐自艾的心理。

★ 2008 Superfest 成就獎

 

MULTIPLE is the story of Alison's confrontation with the unraveling of her body. With creativity, disarming frankness, and a wicked sense of humor, Alison reveals the impact of MS (Multiple Sclerosis) on her work, her friends and family, and her own self-image. The film covers topics which will be of interest to a wide audience --- from newly-diagnosed people, to people with MS worried about telling others about their condition. The film also addresses the interests of families, friends, and health professionals who want to hear one woman's insider explanation of what her MS symptoms feel like. The film will also be of interest to anyone who wants to explore how one's body affects self image. ...
 

 

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